Spring Break at Roy Lake

 

 

 

Spring Break was a great time to get away right here in Minnesota.  Because of Darren's accident, we decided to purchase new family room furniture for our "trip" and do something closer to home.  We had always wanted to go to Grandview Lodge up in Nisswa.  The weather was great, we sat on the deck of our little red cabin every day.  Somebody had to watch the ice melt, right? 

 

 

Our cabin was beautiful inside and out, breakfast and dinner at the lodge were delicious.  We watched eagles and other critters every day.  It was a wonderful respite from our busy lives.  We can't wait to go back again.

Happy Birthday Dad/Darren/Honey!

A Slip and a Fall

Darren slipped on some Christmas boxes while carrying a laundry basket and fell down the stairs.  December 26th is not the day to be in the Emergency Room.  It was not busy, but there were not too many doctors available. 

Broken ankle, broken tibia, and we later found out, a broken fibula.  He really did a number on it. 

Looking back on it, it didn't seem so bad.  He read on his Kindle and got to have good looking women hold his leg while they casted it!  But, it was also pretty awful.  Lots of pain, lots of waiting, and lots of barf bags.  Yippeee! 

Charlie helped by applying pressure. 

The future held:  surgery, therapy, throwing up from pain pills, lots of take out, and me struggling because my head explosions didn't let up for one second (and I couldn't take pain pills myself because I had to be able to drive.)  Darren was able to work from home, he also had a driver and a car for a few trips to the office, and he smiled and joked through the whole thing.  And his kneel chair made him dangerous. 

We also found out just how many people really care about us.  Thanks to all for everything! 

After having trouble with his big toe early in the summer, we found out that he had also broken his fibula.  Hard to believe that every doctor that had looked at it had missed this.  But, it healed well, and so, I guess was just easy as the tibia fracture.  The ankle, on the other hand, was a really rough road.  He still has swelling and pain now (I'm writing this in September).  Darren has become a road map of scars.  He's one tough cookie! 

 Before Surgery.

                                                                                After! 

                                     And yes, he had to break those screws during therapy.  Fun.

Post anesthesia.  He kept saying, "I've gotta go up."  I really should have shot some video.  Sorry hon, but if you want better pictures, you're going to have to write your own blog posts.  Love ya.

 

 

We got bored a lot, as you can see by the special effects shots of his casts, but the time together was wonderful!  Funny how I had wished and prayed for more time together because Darren works such long hours.  This wasn't exactly what I had wanted, but it still was nice overall. 

Merry Christmas Eve!

                                                      Mom said I have to take pictures of the food!

                                                                Carol and Betty

                                                              Grandma Jo and Sam (She is shrinking!)

                                                                         Our Happy Family!

New Smile in Progress

Sam has had quite a year of dental work.  We're so proud of him that he's been able to face his fears and overcome them.  It helps a lot to have a dentist who's gentle, kind, and who has a lot in common with Sam. 

Today he got his top braces on.  Things are so much better in the world of orthodontics than when I was a kid, but it's still a big transition.  Bottom ones will go on in about 2 months, giving an area in his mouth time to heal after an emergency trip to the oral surgeon 2 weeks ago. 

We love his orthodontist.  It's nice to find one that is a really good fit for Sam as well. 

Sam's First Chamber Orchestra Concert

Sam worked so hard to audition and get into Chamber Orchestra.  These videos are actually of the regular 8th grade orchestra because I was too enthralled to tape the smaller orchestra.  Wonderful concert.  We are so lucky to have these opportunities in our district.  After my small town school experience, this just amazes me. 

The first piece is the Theme from Schindler's List.  The solos are pretty impressive!  The orchestra played this for a Holocaust Rememberance Program.  Also impressive is the fact that it is self directed.  The second is Eleanor Rigby, a Beatles classic. 

Listen for the bass.  Love it!

Their next tour is at Christmastime at Hennepin County Government Center.  Looking forward to it!

Headache Update or Would Somebody Please Remove the Axe that is Stuck in the Top of My Head

I haven't been good about updating our blog. Mostly because I just haven't been up to it.

Last Spring, a medication that had been working to treat my pseudotumor was discontinued by the manufacturer. It just wasn't profitable enough for them to continue making it despite the fact that many people had found success in it's use. Yes, big business and health care are terrible partners.

Since then, I have had almost a continuous spinal headache. This is not a migraine. I've appreciated hearing from people who have had a spinal headache because they are so empathetic. Thankfully, Darren has had one, so he knows the level of pain that I live with. Yep, it's pretty bad and it does not end.

Things have changed with my headaches as well. Panic attacks, which I am told are normal when in anticipation of great pain and cabin fever have been the worst. It feels very familiar to when I was first diagnosed and had no answers. This has significantly changed my life and to be quite honest, I'm pretty sick of it.

As well, I have been experiencing abdominal pain, which I also had when I was first diagnosed, so perhaps it's related. Anyhoo, I've had every test under the sun and all have been negative, which is positive. It's better than it was in the Spring, but still annoying.

Everything I've accomplished in the last few months has been in spite of pain, which is pretty remarkable when I look at it in hindsight, but pretty unbearable when I'm actually doing it. Please know that if I haven't been able to attend something or visit you that it's not because I haven't wanted to, but because I physically haven't been able to. I'll be updating our blog with recent events, but not many of them have been very easy for me. Living with an invisible chronic illness can be pretty rough on it's own, but by far the worst part is feeling like life is marching on by without you. As well, people seem to think your just fine or cured if you're "caught" experiencing life. Please remember as you read our updates that I've done all of these things in spite of great pain and that I'm always wishing I could do more.

Prayers are appreciated if that's your thing. If it's not, do it anyway. I need them.

Thanks!
Betsi